The B Hub
Resource Library
Welcome to our Resource Library Blog page, where you can discover valuable content tailored to your specific interests and needs. Whether you're seeking information on the latest advancements in hemophilia B treatment or looking for personal stories from individuals with hemophilia B, this is the place to be. With our convenient filter options or by exploring the dedicated hubs, you can easily access articles that resonate with you on a deeper level. Take advantage of this resource and empower yourself with knowledge and insights that are relevant to your unique journey.
The Beats Program
Elevating Each Other Through Music: The Growth and Power of Human Connection
THE WORLD OF WORK
If you have been working but are finding it increasingly hard to do your job, especially if your physical condition changes, you may wish to consider a number of tools which may help.
Hemophilia B Classifications for Women
Now that we are recognizing women can also have hemophilia, it is important to define diagnostic criteria that apply to them.
Federal Funding and Hemophilia Treatment Centers
We know that many of you are concerned about the future of federal funding for Hemophilia Treatment Centers (HTCs) given the uncertainty surrounding recent policy changes.
Rare Pediatric Disease & Priority Review Vouchers
Making Treatment More Accessible: How Pediatric Vouchers Help Families Afford Hemophilia Care
Getting to Know Dr. David Clark
As an active Chairman of the Coalition, Dr. Clark is deeply involved in the hemophilia community.
Hemlibra for Hemophilia B!?
Hemlibra is not indicated for the treatment of hemophilia B, but recent studies show that it might actually be beneficial for a few hemophilia B patients.
Prophylaxis for Mild or Moderate Hemophilia B
Prophylaxis for mild or moderate hemophilia B is becoming more common.
Cognitive & Behavioral Outcomes
The eTHINK study looked at cognitive, behavioral and adaptive functions in children and young adults with hemophilia A or B in the US.
Quality of Life
Hemophilia Carriers Have Quality of Life Comparable to Women with vWD and Other Bleeding Disorders
Depression, Anxiety, and Fatigue
Women with Hemophilia Have More Depression, Anxiety, and Fatigue than Men