The years between 2006 and 2009 will go down in my history as the most intense and volatile season in my life. I cannot imagine anything, nor dare comprehend a more burning crucible than those burdensome and intense years.

Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!

Reflections on the 2025 Sanofi Patient Advocacy Council by Kim Phelan 

The Coalition for Hemophilia B Responds to Pfizer’s Discontinuation of Gene Therapy for Hemophilia B

Here comes the fun!

Izzy is Finding Her Voice Both On and Off Stage

Empowering Tool For Parents

Elevating Each Other Through Music: The Growth and Power of Human Connection

If you have been working but are finding it increasingly hard to do your job, especially if your physical condition changes, you may wish to consider a number of tools which may help.

Now that we are recognizing women can also have hemophilia, it is important to define diagnostic criteria that apply to them.

We know that many of you are concerned about the future of federal funding for Hemophilia Treatment Centers (HTCs) given the uncertainty surrounding recent policy changes.

A Story of Resilience and Advocacy in the Bleeding Disorder Community

Don’t Give Up on Living Your Best Life

Making Treatment More Accessible: How Pediatric Vouchers Help Families Afford Hemophilia Care

As an active Chairman of the Coalition, Dr. Clark is deeply involved in the hemophilia community.

Hemlibra is not indicated for the treatment of hemophilia B, but recent studies show that it might actually be beneficial for a few hemophilia B patients. 

Prophylaxis for mild or moderate hemophilia B is becoming more common.

The eTHINK study looked at cognitive, behavioral and adaptive functions in children and young adults with hemophilia A or B in the US.