Get ready for a holiday experience full of wonder and joy! Santa Claus himself is taking a break from his busy preparations to join us for a very special meet and greet.

Santa will join us on December 18th for a Zoom call from the North Pole.

Click HERE to register today!

You must be qualified to receive gene therapy to attend.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.

Join us for an informative presentation on gene therapy, covering the entire process from consultation to treatment. This event is for everyone considering gene therapy, including their family that supports them. Hear firsthand from someone who has undergone this groundbreaking therapy for hemophilia B and get your questions answered!

Expert Speaker: Mike Zolotnisky

Topic: Balancing after 50: Fall Prevention

You must be qualified to receive gene therapy to attend.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.

We proudly present our next Caregivers Info Session on Thursday, November 14th. Parents and caregivers of children all ages are welcome to join us to discuss gene therapy with a current patient and a family nurse practitioner. Plus, dinner vouchers are provided for all guests.

Featuring Betsy Koval, RN, BSN, CSL Patient Resource Navigator

Expert Speaker: Amanda Brito del Pino

Amanda Brito del Pino has moderate hemophilia; she is a carrier and mother of a child with hemophilia. She is a volunteer member of the Women and Girls Committee of the World Federation of Hemophilia, the Board of the Coalition of the Americas, and the patient organization of her country, Uruguay.

Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

Expert Speaker: Danielle Nance, MD 

Topic: How to take care of yourself first

When the parent is also the patient: tips to take care of yourself and your child with a bleeding disorder.

Dr. Nance is a board-certified hematologist broadly trained in blood cancers and benign conditions of the blood, with additional training in hemostasis, thrombosis, and blood banking.

If you’re considering gene therapy or are already involved, we invite you to join our private group discussion with a member of our hemophilia B community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided!

Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

The Coalition’s COO Kim Phelan hosts a Meet & Greet with parents and caregivers in our community. Join us October 1 and October 24 for raffles, games and connections.

Click here to join us!

Register HERE today!

Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

Register HERE today!

Register HERE today!

Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

We proudly present our next Caregivers Info Session on Thursday, October 10. Parents and caregivers to children and adult children of all ages are welcome to join us to discuss gene therapy with a current gene therapy patient and a family nurse practitioner. Plus, dinner vouchers are provided for all guests.

You can never be too prepared when it comes to your career! Experts advise continually updating your resume, even when you are not actively job searching.

Join Dr. April Willis October 8, 2024 at 8 p.m. ET/5 p.m. PT for a virtual Resume Writing Workshop.

In addition to The Coalition for Hemophilia B’s Dr. Willis, Forbes Coaches Council will guide you with their expert career advice. We will cover a range of topics including resume writing, career planning, goal setting and LinkedIn optimization.

Since 2018, Dr. April Willis is the Founder and Lead Consultant of April Willis Consulting. She is also a notable and engaging professional speaker. In addition to her doctorate, Dr. Willis has three Masters degrees (MBA and two MEds). She has worked at the campus, district and state levels of education and her areas of expertise also include small businesses, non-profits, start-ups and sales. Dr. Willis is also a professional writer with two books on achieving academic and career success.

The highly esteemed Forbes Coaches Council is composed of professionals hand-picked for their years of experience and impact in their respective industries.

Register Now

Register HERE today!

The Coalition for Hemophilia B’s Teen Advocacy Program proudly will proudly host a B Leaders virtual event on October 2 at 7 p.m. ET.

We are excited for Jayden, a teen member of our community, to host a round of Jackbox Game: The Wheel of Epic Proportions.

Register HERE for October’s virtual Teen Advocacy Program event.

The Coalition’s COO Kim Phelan hosts a Meet & Greet with parents and caregivers in our community. Join us October 1 and October 24 for raffles, games and connections.

Click here to join us!

Register HERE today!

The Coalition for Hemophilia B’s Teen Advocacy Program proudly will proudly host a B Leaders virtual event on September 5 at 7 p.m. ET.

We are excited for Connor, a teen member of our community, to lead an engaging game of Bracketeering.

What is Bracketeering?

Get ready for some friendly competition! In Bracketeering, players anonymously answer off-beat and unexpected questions. Then, a bracket-style tournament ensues, where answers are eliminated until a winner is chosen. Do you have what it takes to be crowned the Bracketeering champion?

In addition to Connor’s game of Bracketeering, Matt Brackdull will lead our rap session.

Do you have a teen with hemophilia B? The Coalition would love to have them join us for the next B Leaders virtual event.

Register HERE for September’s virtual Teen Advocacy Program event.

Register HERE today!