For men with hemophilia B over 18.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.

February 18 & March 18
SAFEGUARDING OUR HEALTH IN TIMES OF UNCERTAINTY

Featuring Expert Speaker Dr. Bill Patsakos

For men with hemophilia B over 18.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.

Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

The Coalition for Hemophilia B’s Teen Advocacy Program proudly will proudly host a B Leaders virtual event.

Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

This virtual session will feature information about the first step in the gene therapy patient journey as well as a question and answer segment with a gene therapy patient and a social worker.

For men with hemophilia B over 18.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.

Prepárese para una experiencia navideña llena de asombro y alegría. El mismísimo Papá Noel hará una pausa en sus ajetreados preparativos para reunirse con nosotros en un encuentro muy especial.

Get ready for a holiday experience full of wonder and joy! Santa Claus himself is taking a break from his busy preparations to join us for a very special meet and greet.

Santa will join us on December 18th for a Zoom call from the North Pole.

Click HERE to register today!

You must be qualified to receive gene therapy to attend.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.

Join us for an informative presentation on gene therapy, covering the entire process from consultation to treatment. This event is for everyone considering gene therapy, including their family that supports them. Hear firsthand from someone who has undergone this groundbreaking therapy for hemophilia B and get your questions answered!

Expert Speaker: Mike Zolotnisky

Topic: Balancing after 50: Fall Prevention

You must be qualified to receive gene therapy to attend.

If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.

We proudly present our next Caregivers Info Session on Thursday, November 14th. Parents and caregivers of children all ages are welcome to join us to discuss gene therapy with a current patient and a family nurse practitioner. Plus, dinner vouchers are provided for all guests.

Featuring Betsy Koval, RN, BSN, CSL Patient Resource Navigator

Expert Speaker: Amanda Brito del Pino

Amanda Brito del Pino has moderate hemophilia; she is a carrier and mother of a child with hemophilia. She is a volunteer member of the Women and Girls Committee of the World Federation of Hemophilia, the Board of the Coalition of the Americas, and the patient organization of her country, Uruguay.

Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

Expert Speaker: Danielle Nance, MD 

Topic: How to take care of yourself first

When the parent is also the patient: tips to take care of yourself and your child with a bleeding disorder.

Dr. Nance is a board-certified hematologist broadly trained in blood cancers and benign conditions of the blood, with additional training in hemostasis, thrombosis, and blood banking.

If you’re considering gene therapy or are already involved, we invite you to join our private group discussion with a member of our hemophilia B community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided!

Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

The Coalition’s COO Kim Phelan hosts a Meet & Greet with parents and caregivers in our community. Join us October 1 and October 24 for raffles, games and connections.

Click here to join us!

Register HERE today!

Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

Register HERE today!

Register HERE today!

Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.

We proudly present our next Caregivers Info Session on Thursday, October 10. Parents and caregivers to children and adult children of all ages are welcome to join us to discuss gene therapy with a current gene therapy patient and a family nurse practitioner. Plus, dinner vouchers are provided for all guests.