Upcoming Events
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Annual Symposium 2025
Join us at the 2025 Symposium!
Get ready for a magical experience in Orlando, Florida, from April 10-13 as we celebrate 35 years of dedication to the Hemophilia B community. This milestone is for the incredible individuals like you who make it all possible!
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Family Meetings on the Road - St. Louis, MO
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Family Meetings on the Road - San Antonio, TX
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Hemophilia B Product Landscape with Dr. David Clark
Understand your treatment options with Dr. David Clark!
Women’s Georgia Retreat
The Hemophilia B Women’s Education & Empowerment Program is an outstanding success for women with hemophilia B, mothers of children with hemophilia, and spouses! This is a unique three-day experience, during which women are given a safe space to share their journey with others and gain support.
The Beats
🎶 Calling all musicians ages 13+ for an incredible experience with the Beats in Nashville, TN, this summer! All skill levels are welcome to apply! *Ages 13-14 need to be accompanied by at least one parent.
Ready for Anything: Emergency Preparedness
February 18 & March 18
SAFEGUARDING OUR HEALTH IN TIMES OF UNCERTAINTY
Featuring Expert Speaker Dr. Bill Patsakos
Hemophilia B Product Landscape with Dr. David Clark
Understand your treatment options with Dr. David Clark!
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Advancing Inhibitor Care
Say hello to a new prophylaxis option for adults and adolescents who have hemophilia with inhibitors!
Foro Latino De Hemofilia B
Expert Speaker: Carolina Castillo, LPC, LMHC, BC-CMHC
Being a Latino(a) parent in the USA: conflicts, beliefs, traditions, fears, family dynamics
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Ready for Anything: Emergency Preparedness
February 18 & March 18
SAFEGUARDING OUR HEALTH IN TIMES OF UNCERTAINTY
Featuring Expert Speaker Dr. Bill Patsakos
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Family Meetings on the Road - Richmond, VA
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
B-Leaders Teen Virtual Event
The Coalition for Hemophilia B’s Teen Advocacy Program proudly will proudly host a B Leaders virtual event.
Family Meetings on the Road -Birmingham, AL
Join us for the 2025 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Considerations in Gene Therapy
This virtual session will feature information about the first step in the gene therapy patient journey as well as a question and answer segment with a gene therapy patient and a social worker.
Gene Therapy Support Network
For men with hemophilia B over 18.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Visit with Santa - Spanish
Prepárese para una experiencia navideña llena de asombro y alegría. El mismísimo Papá Noel hará una pausa en sus ajetreados preparativos para reunirse con nosotros en un encuentro muy especial.
Visit with Santa
Get ready for a holiday experience full of wonder and joy! Santa Claus himself is taking a break from his busy preparations to join us for a very special meet and greet.
Santa will join us on December 18th for a Zoom call from the North Pole.
Gene Therapy Support Network
You must be qualified to receive gene therapy to attend.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Virtual Woman’s Education & Empowerment Program
The Hemophilia B Women's Education and Empowerment Program provides vital support and resources to women with hemophilia B, mothers of children with hemophilia B, and their spouses. Together, we’re fostering empowerment and education for all in our community!
Gene Therapy Family Info Session
Join us for an informative presentation on gene therapy, covering the entire process from consultation to treatment. This event is for everyone considering gene therapy, including their family that supports them. Hear firsthand from someone who has undergone this groundbreaking therapy for hemophilia B and get your questions answered!
Strength in Connection - 50 and Over Virtual Series
Expert Speaker: Mike Zolotnisky
Topic: Balancing after 50: Fall Prevention
Gene Therapy Support Network
You must be qualified to receive gene therapy to attend.
If you’re considering gene therapy or already involved, we invite you to join our private group discussion with a member of our hemophilia b community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided! Sign up and let us know you’re coming.
Gene Therapy Family Info Session
We proudly present our next Caregivers Info Session on Thursday, November 14th. Parents and caregivers of children all ages are welcome to join us to discuss gene therapy with a current patient and a family nurse practitioner. Plus, dinner vouchers are provided for all guests.
Featuring Betsy Koval, RN, BSN, CSL Patient Resource Navigator
Foro Latino De Hemofilia B
Expert Speaker: Amanda Brito del Pino
Amanda Brito del Pino has moderate hemophilia; she is a carrier and mother of a child with hemophilia. She is a volunteer member of the Women and Girls Committee of the World Federation of Hemophilia, the Board of the Coalition of the Americas, and the patient organization of her country, Uruguay.
Family Meetings on the Road - Anaheim, CA
Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Parenting Support: Newborn to Empty Nest
Expert Speaker: Danielle Nance, MD
Topic: How to take care of yourself first
When the parent is also the patient: tips to take care of yourself and your child with a bleeding disorder.
Dr. Nance is a board-certified hematologist broadly trained in blood cancers and benign conditions of the blood, with additional training in hemostasis, thrombosis, and blood banking.
Gene Therapy Support Network
If you’re considering gene therapy or are already involved, we invite you to join our private group discussion with a member of our hemophilia B community. We’ll share firsthand experiences and answer all your questions. Plus, dinner vouchers will be provided!
Family Meetings on the Road - Chicago, IL
Join us for the 2024 Family Meetings on the Road and connect with your hemophilia B community! These events will take place all over the country, so find the one closest to you and come along.
Parents Meet & Greet with Kim Phelan
The Coalition’s COO Kim Phelan hosts a Meet & Greet with parents and caregivers in our community. Join us October 1 and October 24 for raffles, games and connections.
Click here to join us!
