Aging with hemophilia B

Logos of a company with a B and drop and Pfizer with "Partnership with Purpose" text.

Aging with hemophilia brings unique challenges and opportunities. As individuals with hemophilia grow older, they often navigate complex health concerns, such as joint issues, cardiovascular health, and the evolving needs of their bleeding disorder care. Advances in treatment have extended life expectancy and improved quality of life, yet the aging hemophilia community faces new frontiers in managing their condition alongside the natural aging process.

The Coalition for Hemophilia B remains dedicated to providing education, resources, and support to help older individuals with hemophilia maintain active, fulfilling lives, emphasizing comprehensive care and community connection every step of the way.

Portrait of a man with a beard and glasses. Text describes Dr. David Clark's involvement with hemophilia research and contributions to the Coalition for Hemophilia. Background features blue and white colors with the Coalition for Hemophilia logo.
Resource Library
Dr. David Clark
Iron Overload in Hemophilia Joint Damage
Dr. David Clark

Iron Overload in Hemophilia Joint Damage

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Dr. David Clark
Dr. David Clark
Joint Health, Pain, and Mental Well-Being
Dr. David Clark

Association of Joint Status and Pain with Depression, Anxiety and Stress 

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Dr. David Clark
Dr. David Clark
Joint Bleeds in Mild Hemophilia 
Dr. David Clark

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Dr. David Clark
Dr. David Clark
Force-Sensing Treadmill to Detect Arthropathy 
Dr. David Clark

A group of Japanese researchers is studying whether gait analysis (the way people walk) using a force-sensing treadmill can be used to detect hemophilic arthropathy (joint damage).

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Dr. David Clark
Dr. David Clark
Bones and Joints and Pain, Oh My!
Dr. David Clark

Quality of life has become the focus of much of today’s research.

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Dr. David Clark
Dr. David Clark
No Difference in Quality of Life Between Hemophilia A and B.
Dr. David Clark

Periodically, we see reports comparing hemophilia A and B.

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Dr. David Clark
Dr. David Clark
Pain, Depression, and Anxiety Drugs in Hemophilia
Dr. David Clark

The Use of Pain, Depression, and Anxiety Drugs in Hemophilia

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Dr. David Clark
Dr. David Clark
FIX, Ehlers-Danlos Syndrome and Clotting Research History
Dr. David Clark

Ehlers Danlos and Factor IX

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Dr. David Clark

Upcoming Events

Upcoming Events
Gene Therapy Support Network
Apr 29

The Boundless B Podcast

Boundless B Podcasts for Women
From Silence to Strength: Women and Hemophilia B
From Silence to Strength: Women and Hemophilia B

Episode 10: From Silence to Strength: Women and Hemophilia B

The Road to Independence and Adulthood
The Road to Independence and Adulthood

Episode 8: The Road to Independence and Adulthood


A Mother’s Hemophilia B and Inhibitor Journey
A Mother’s Hemophilia B and Inhibitor Journey

Episode 7: A Mother’s Hemophilia B and Inhibitor Journey

Women and Hemophilia B
Women and Hemophilia B

Women and Hemophilia with Dr. Danielle Nance.

Enhancing Mental Health in Hemophilia B
Enhancing Mental Health in Hemophilia B

Community and Mental Health, an interview with Dr. Mina Nguyen-Driver

Real Stories from Our Community

Resource Library
Theresa Mitchell
Theresa Mitchell

From Hemophilia to Cancer: A Mother's Journey of Strength, Resilience, and Advocacy 

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Increasing PTSD Awareness 
Increasing PTSD Awareness 

Post Traumatic Stress Disorder in bleeding disorders is complex.

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Thoughts From an Old Car Nut
Thoughts From an Old Car Nut
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My Gene Therapy Journey
My Gene Therapy Journey
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Stormy Woods Johnson
Stormy Woods Johnson

Bridging the Gap Between Diagnosing and Treating Women

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Image featuring a professional profile of a man with details about his experience in government relations and nonprofit advocacy. Text highlights his work history and current role with The Coalition for Hemophilia B. The background has blue and green graphics with a photo of the man on the right side.

Videos

Resources on aging

  • The B2B book series from Pfizer covers a wide range of topics that speak to the hemophilia B community. A Guide for Mature Adults DOWNLOAD. Learn from experience how to recognize certain situations that may arise for mature adults, with guidance along the way.

  • Read Karl’s story - click here

  • Read Wayne’s story - click here

Join together and learn the proper
ways to infuse.

Have legal questions? Attorney
Donnie Akers has answers.

Learn how others like you are
dealing with Hemophilia B.

Hemophilia B Educational Videos