Hemophilia B News

Fall 2024

Newsletter cover for Hemophilia B News Fall 2024 by the Coalition for Hemophilia B, featuring photos of award ceremonies and events such as the Eternal Spirit Award presentation and a men's retreat, with accompanying text about honorees and topics like insurance programs.

Summer 2024

Cover of Hemophilia B News magazine, Summer 2024 edition, featuring various community images related to programs like men's education and empowerment, and beats music program. Headline 'Community Strong!' and article titles listed on the cover.

Spring 2024

Cover of "Hemophilia B News" spring 2024 edition from The Coalition for Hemophilia B featuring photos of a speaker, child with glowing accessories, a man holding a poster, two children hugging, and a large group photo of people. Text includes "Symposium 2024, Kim Phelan speaks at congressional briefing" and "Meet puzzle enthusiast and trivia master, Anna-Marie. Hemophilia Landscape."

  • 2024 Symposium

  • Emerging Therapies

  • Parenting Support

Winter 2023

Cover of 'Hemophilia B News' Winter 2023 edition. Central image of a man sitting on a dock; titled 'Meet Christian'. Other images include women in a virtual retreat, a men's retreat, a group meeting, and someone swimming, labeled 'Gen IX'. Headlines discuss healthcare middlemen, advocacy, living with no regrets, and tailoring life to serve others.

Past Publications

Cover of Hemophilia B News, Fall 2023 edition, featuring images from women's, partners', and men's retreats, along with a person and a DNA helix, with phrases like "My Gene Therapy Journey" and various lifestyle reflections.

Fall 2023

  • Finding Community Through Parenting

  • Gene Therapy Journey

  • Event Recaps

Otoño 2023: En Español

Cover of Hemophilia B News, Fall 2023 edition, featuring images from various retreats and events, a large DNA graphic, and article titles. Text in both English and Spanish.

  • Encontrar comunidad a través de la crianza de los hijos

    Viaje de terapia génica

    Recapitulación de eventos

Summer 2023

Cover of "Hemophilia B News" Summer 2023 edition with four photos: a man and woman in formal attire, a drummer performing, a group in life jackets on a river, and a man playing guitar. Text includes article titles: "The World of Work," "Current Products for Hemophilia B," "Eye of the Hurricane," "Meet Uncle Steve - The Luckiest Guy in the Room," and "Good Gumming - Floss and Communication."

  • Current Products for Hemophilia B

  • The World Of Work

Verano 2023: En Español

Cover of 'Hemophilia B News' Summer 2023 issue by The Coalition for Hemophilia B, featuring four photos: a man and woman posing in formal attire, a drummer performing, a group on a rafting trip, and a man playing guitar. Text in Spanish highlights articles about work life, hemophilia B products, hurricane eye, and meeting 'Uncle Steve, the luckiest guy.'

  • Productos actuales para Hemofilia B

  • El mundo del trabajo

Spring 2023

Cover of 'Hemophilia B News' Spring 2023 edition from The Coalition for Hemophilia B, featuring various images including a child with painted face, a large group photo, people at an event, and a band performance. Text highlights symposium 2023 and other articles.

  • Symposium 2023 Recap

  • Navigating Live: A Journey of Diagnosis, Care, and Personal Growth

Cover of Hemophilia B News, Spring 2023 edition, featuring images of a child with face paint, a group gathering, people posing with arms flexed, and behind-the-scenes of a filming set. The publication is by The Coalition for Hemophilia B, a nonprofit organization.

Primavera 2023: En Español

  • Simposio 2023 Resumen

    Navegando en vivo: un viaje de diagnóstico, cuidado y crecimiento personal

Winter 2022

Newsletter cover for Hemophilia B News, Winter 2022, featuring stories about an ultramarathon runner, a person named Dan Bond, and someone named Wayne with a classic car. Includes announcements on emerging therapies and scholarships.

  • Emerging Therapies

  • Scholarship Applications Now Open

Cover of 'Hemophilia B News' Winter 2022 issue featuring images of an ultramarathon runner, a person with aircraft models, and a man driving a vintage car, with Spanish text titles.

Invierno 2022: En Español

  • Terapias Emergentes

  • Solicitudes de becas ya abiertas

Fall 2022

Hemophilia B News Fall 2022 newsletter cover featuring images from men's retreat, leadership experience, and family meetings. Highlights include a 2023 symposium, FDA approval, and emerging therapies.

  • Save the Date: 2023 Symposium

  • Historic FDA Approval

  • Emerging Therapies

Otoño 2022: En Español

Front page of 'Hemophilia B News' Autumn 2022, featuring various photos of group events, captions in Spanish, and announcements for symposium and FDA approval.

  • Guarde la fecha: Simposio 2023

  • Aprobación histórica de la FDA

  • Terapias emergentes

Summer 2022

Collage from Hemophilia B News Summer 2022 edition, featuring various events including Women's Education & Empowerment Retreat, Evening of Celebration, Generation IX Mentorship, and Men's Education & Empowerment Retreat.

  • An evening of celebration

  • Empowerment and Retreats

Verano 2022: En Español

Front page of 'Hemophilia B News' Summer 2022 issue by The Coalition for Hemophilia B. Features images from events including a women's education retreat, a men's spring retreat, and a celebration night. Includes a photo of a woman speaking at a microphone, a group image, and a bobblehead on a dinner table.

  • Empoderamiento y Retiros Una tarde de celebración

Spring 2022

Cover of Hemophilia B News Spring 2022 showing diverse groups of smiling people at a conference. Features include symposium, music program, and therapies.

  • Symposium

  • Emerging Therapies

Primavera 2022: En Español

Magazine cover titled "Hemophilia B News" with multiple photos of people, some wearing colorful clothes and smiles. Header indicates it's from spring 2022 by The Coalition for Hemophilia B. Text in Spanish includes topics like symposiums, programs, and emerging therapies.

  • Simposio

  • Terapias emergentes

Fall 2021

Hemophilia B News Winter 2021

Invierno 2021: En Español

Magazine cover for 'Hemophilia B News,' Winter 2021 edition. Features several circular photos of different people and groups. Text includes 'The Coalition for Hemophilia B' and several headlines in Spanish, such as 'Recordando a Val Bias' and 'Los inhibidores en la hemofilia.' Background is geometric and colorful.

Summer 2021

Cover of 'Hemophilia B News,' Fall 2021 edition, featuring a guitar and music notes. Includes circular photos of people singing and playing instruments. Headlines about advocacy, therapies, and a teen's story.

Otoño 2021: En Español

Hemophilia B News newsletter cover featuring musicians and articles. Includes images of performers with guitars and microphones, musical notes, and text in Spanish highlighting themes like self-defense for women with blood disorders, emerging therapies, and a story about a high schooler with hemophilia. Published fall 2021 by The Coalition for Hemophilia B.

Winter 2021

Cover of Hemophilia B News Summer 2021 edition with images of two sets of twins on a clothesline. Text includes: Seeing Double, Eternal Spirit Award Gala, Cassandra's Family, Advocacy Update, Heidi's Story, Emerging Therapies, and 30th Anniversary of The Coalition for Hemophilia B.

Verano 2021: En Español

Cover of "Hemophilia B News" Summer 2021 edition featuring images of twins, with headings about an award gala, family stories, advocacy updates, and emerging therapies.

Spring 2021

Cover of 'Hemophilia B News' publication for Spring 2021, featuring metal beams with red and blue spheres. Text includes 'FIX,' 'PRODUCTS,' 'Getting to know Dr. Clark,' 'Achieving a better life with an ABLE account,' 'Ashley's Story,' and celebrating the 30th anniversary of the Coalition for Hemophilia B.

Primavera 2021: En Español

Cover of Hemophilia B News, Spring 2021 issue, featuring red and blue spheres on metallic beams, with text highlights about Doctor Clark, living with an ABLE account, and Ashley's story. Also mentions The Coalition for Hemophilia B's 30th anniversary.

Community news.

Featured
We stand with The American Society of Hematology (ASH)
We stand with The American Society of Hematology (ASH)

Letter to Sec. Kennedy re: the Reinstatement of CDC's Division of Blood Disorders & Public Health Genomics

An Important Message From Our CEO
An Important Message From Our CEO

Critical changes at the CDC’s Division of Blood Disorders and Public Health Genomics affecting our community.

Qfitlia approved as the first therapy in the US to treat hemophilia A or B with or without inhibitors
Qfitlia approved as the first therapy in the US to treat hemophilia A or B with or without inhibitors

FDA approves Qfitlia.

What’s Happening with Insurance Companies
What’s Happening with Insurance Companies

What’s Happening with Insurance Companies—And Why It Affects You

Meet Connor
Meet Connor
The Greatest Paradox To Growth and Fulfillment
The Greatest Paradox To Growth and Fulfillment

The years between 2006 and 2009 will go down in my history as the most intense and volatile season in my life. I cannot imagine anything, nor dare comprehend a more burning crucible than those burdensome and intense years.

Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!

Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!

Reflections on the 2025 Sanofi Patient Advocacy Council
Reflections on the 2025 Sanofi Patient Advocacy Council

Reflections on the 2025 Sanofi Patient Advocacy Council by Kim Phelan 

Pfizer Discontinues Gene Therapy for Hemophilia B
Pfizer Discontinues Gene Therapy for Hemophilia B

The Coalition for Hemophilia B Responds to Pfizer’s Discontinuation of Gene Therapy for Hemophilia B

Marie Ferrell
Marie Ferrell

Here comes the fun!

Archive.