Financial Assistance Programs

Since 2004 we have been providing short-term financial aid to our hemophilia B community members

Factor Nine Holiday Fund

Every year, our Factor Nine Holiday Fund receives financial donations from our members and friends to help families in our hemophilia community who are in need of a little holiday cheer. We provide holiday gifts for children with hemophilia up to age 17, including food baskets, clothes, boots, and more. All gifts given are new.

Thank you to all who have donated to our holiday fund. Factor Nine Santa wishes everyone a Happy Holidays and a better year ahead.

Emergency Patient Assistance Fund

BCares — the Coalition for Hemophilia B’s emergency assistance fund — provides urgent help to individuals or families affected by hemophilia B when faced with specific critical needs. These crisis situations include basic living expenses, housing, and utility bills. BCares cannot cover medical bills or co-pays. We can provide support when our members are out of work, either because they or their child is hospitalized for a long period of time.

Learn more about eligibility and apply now!

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Patient Assistance Resources

In addition to the Coalition’s own BCares Emergency Patient Assistance program, there are outside charitable service organizations that offer help to people with hemophilia who may be facing financial challenges. Each program’s policies may be different, so please contact the organizations directly for the most up-to-date information on their eligibility requirements and the assistance that may be available to you. Some of them may have COVID-19 specific funds.

Hemophilia Federation of America (HFA) Helping Hands The Helping Hands financial assistance program from HFA offers emergency assistance, items reimbursement, inhibitor support, and other resources. LINK

The Assistance Fund (TAF) An independent 501(c)(3) nonprofit organization dedicated to providing financial assistance to patients with serious and chronic diseases. TAF has programs for copay assistance, insurance premiums and incidentals, and healthcare expenses. LINK

Patient Access Network (PAN) Foundation The PAN Foundation provides financial assistance for individuals with hemophilia. The assistance is out-of-pocket costs, such as deductibles, co-pays and coinsurance, travel expenses, and health insurance premiums. LINK

National Organization for Rare Disorders COVID-19 Rare Disease Critical Needs Non-Medical Assistance Fund (NORD) COVID-19 Rare Disease Critical Needs Non-Medical Assistance Fund For information on how to apply for assistance, call 800-999-6673 (M-Th 8:30AM to 7PM, F 8:30AM to 6PM est). LINK

Patient Services Incorporated (PSI) Patient Services Incorporated (PSI) offers assistance with insurance co-pays and premiums for individuals with hemophilia. The A.C.C.E.S.S. program will assist in explaining state and federal entitlement programs and in answering questions about insurance. PSI also assists with questions about accommodations within the school environment. Contact PSI at 1-888-700-7010; for the PSI legal support hotline call 1-877-851-9065. LINK

Grifols Factors for Health Program Comprehensive Customer Focused Care. To enroll in copay or other patient services, please call: (844) MY FACTOR / 693-2286 – Mon-Fri, 8:00 AM to 8:00 PM EST. LINK

Pfizer Factor Savings Card Pfizer may be able to help you with your out-of-pocket expenses. Eligible patients can save up to $12,000 annually on co-pay, deductible, and co-insurance costs. LINK

Temporary Assistance for Needy Families (TANF) The TANF program is designed to help families in need achieve self-sufficiency. States receive block grants to design and operate programs that accomplish one of the purposes of TANF. LINK

Low Income Home Energy Assistance Program (LIHEAP) initiatives assist families with energy costs (including home energy bills and weatherization and energy-related minor home repairs) and help keep families safe and healthy. LINK

Hemophilia Association of New Jersey The mission of the Hemophilia Association of New Jersey is to improve the quality of life for persons with bleeding disorders by providing and maintaining access to highly qualified medical treaters and successfully proven medical regimens. LINK

Hemophilia Association of New York This organization of and for families affected by bleeding disorders provides information, education, advocacy, and assistance to persons with hemophilia. LINK

New York City Hemophilia Chapter (NYCHC) seeks to foster a sense of community among people affected by bleeding disorders and to improve their quality of life. The organization hosts many events, shares news, and has many other programs. LINK

New York State Bleeding Disorders Coalition is a partnership of not-for-profit organizations dedicated to public advocacy on behalf of people affected by bleeding disorders in New York State. LINK

Help Hope Live supports community-based fundraising for people with unmet medical expenses and related costs due to cell and organ transplants or catastrophic injuries and illnesses. LINK

Other Financial Assistance National Organization for Rare Disorders (NORD) has assembled links and resources to help patients, families and caregivers affected by rare diseases. LINK

Scholarships for the Hemophilia Community

Specialty Children’s Programs

The Compassion Program at Give Kids the World may be able to fulfill requests for theme park admission tickets for adult patients with hemophilia B or a child with hemophilia B and family members if they are planning a visit to Central Florida.

The Kid’s Wish Network is a national charitable organization that grants wishes to children between the ages of 3 and 18 who are have life-threatening medical conditions.

Make-A-Wish is a national charitable organization that grants wishes to children diagnosed with a critical illnesses.