Get to know our community, stay up to date on important industry news and learn about the latest happenings with Hemophilia B

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Our plasma hero
Our plasma hero
Pfizer Advocacy Meeting
Pfizer Advocacy Meeting
Hemophilia Landscape Emerging Therapies
Hemophilia Landscape Emerging Therapies
2025 Open Enrollment Notification
2025 Open Enrollment Notification
Living with Von Willebrand Disease Type 2B: A Patient’s Journey
Living with Von Willebrand Disease Type 2B: A Patient’s Journey
Living with Hemophilia B: Anna-Marie’s Story of Resilience and Learning
Living with Hemophilia B: Anna-Marie’s Story of Resilience and Learning
Factor Levels in Hemophilia B Carriers
Factor Levels in Hemophilia B Carriers
Scramblases
Scramblases
Iron Overload in Hemophilia Joint Damage
Iron Overload in Hemophilia Joint Damage
Intradermal Injection Can Cause Inhibitor Development
Intradermal Injection Can Cause Inhibitor Development
Is Inhibitor Development Affected by the Product Used?
Is Inhibitor Development Affected by the Product Used?
Hemophilia Carrier Screening
Hemophilia Carrier Screening
What treatments are received by patients with inhibitors?
What treatments are received by patients with inhibitors?
Inhibitors in Hemophilia A and B Might Occur by Different Mechanisms
Inhibitors in Hemophilia A and B Might Occur by Different Mechanisms
Historic Milestone: The Coalition for Hemophilia B Supports Inaugural Congressional Briefing on Women with Bleeding Disorders
Historic Milestone: The Coalition for Hemophilia B Supports Inaugural Congressional Briefing on Women with Bleeding Disorders
Association of Joint Status and Pain with Depression, Anxiety and Stress 
Association of Joint Status and Pain with Depression, Anxiety and Stress 
Does Prophylaxis Help Prevent Joint Damage? 
Does Prophylaxis Help Prevent Joint Damage? 
Joint Bleeds in Mild Hemophilia 
Joint Bleeds in Mild Hemophilia 
Force-Sensing Treadmill to Detect Arthropathy 
Force-Sensing Treadmill to Detect Arthropathy 
Bleeding in Young Hemophilia Carriers 
Bleeding in Young Hemophilia Carriers 
Mental Health of Hemophilia Carriers in China 
Mental Health of Hemophilia Carriers in China 
Postpartum Hemorrhage in Women with Bleeding Disorders 
Postpartum Hemorrhage in Women with Bleeding Disorders 
From Hemophilia to Cancer: A Mother's Journey of Strength, Resilience, and Advocacy 
From Hemophilia to Cancer: A Mother's Journey of Strength, Resilience, and Advocacy 
Advancing health equity and enhancing chronic disease care with key CMS letters
Advancing health equity and enhancing chronic disease care with key CMS letters
Bones and Joints and Pain, Oh My!
Bones and Joints and Pain, Oh My!
No Difference in Quality of Life Between Hemophilia A and B.
No Difference in Quality of Life Between Hemophilia A and B.
Thrombin Generation as an Indication of Hemophilia Severity
Thrombin Generation as an Indication of Hemophilia Severity
The Use of Pain, Depression, and Anxiety Drugs in Hemophilia
The Use of Pain, Depression, and Anxiety Drugs in Hemophilia
Results from My Life, Our Future
Results from My Life, Our Future
Increasing PTSD Awareness 
Increasing PTSD Awareness 

Industry News.

Featured
Alternative Funding Mechanisms - A Call to Action
Alternative Funding Mechanisms - A Call to Action
CHB Action Alert for Copay Accumulator
CHB Action Alert for Copay Accumulator
First Gene Therapy for Hemophilia B is Approved by the FDA
First Gene Therapy for Hemophilia B is Approved by the FDA
World Federation of Hemophilia Gene Therapy Registry: now live!
World Federation of Hemophilia Gene Therapy Registry: now live!
Gene Therapy
Gene Therapy
FDA approves CSL’s HEMGENIX® for Gene Therapy for Hemophilia B
FDA approves CSL’s HEMGENIX® for Gene Therapy for Hemophilia B

B Voice Advocacy News.

We want to keep you informed of the issues that underscore why advocacy matters. Check this page periodically for news and information.

Featured
Increasing PTSD Awareness 
Increasing PTSD Awareness 
Alternative Funding Mechanisms - A Call to Action
Alternative Funding Mechanisms - A Call to Action
Ask Jen: How Common Are Fluctuating Factor Levels in Women?
Ask Jen: How Common Are Fluctuating Factor Levels in Women?
I Feel Isolated with Hemophilia in My Small Town—How Can I Connect with Others?
I Feel Isolated with Hemophilia in My Small Town—How Can I Connect with Others?
CHB Action Alert for Copay Accumulator
CHB Action Alert for Copay Accumulator
Turning a No to a Yes—The Art of Advocacy
Turning a No to a Yes—The Art of Advocacy
Dana’s Living Her Life with No Regrets - Embracing Life with Hemophilia B and Finding Joy in Family Adventures
Dana’s Living Her Life with No Regrets - Embracing Life with Hemophilia B and Finding Joy in Family Adventures
Ask Jen: How do you travel with medications for hemophilia?
Ask Jen: How do you travel with medications for hemophilia?
Sew Connected! From Hemophilia Advocate to Fashion Innovator
Sew Connected! From Hemophilia Advocate to Fashion Innovator
Ask Jen: How do you get your doctor to take you seriously?
Ask Jen: How do you get your doctor to take you seriously?
Novo Nordisk Announces Shortage of 8 mg Vial Size of NovoSeven® RT
Novo Nordisk Announces Shortage of 8 mg Vial Size of NovoSeven® RT
The Power of Self Advocacy for Women Bleeders
The Power of Self Advocacy for Women Bleeders
Empowering Your Healthcare Journey: Connect with Independent Patient Advocates
Empowering Your Healthcare Journey: Connect with Independent Patient Advocates
Dismantling Gender Bias to Ensure Equitable Hemophilia Treatment in Women and Girls
Dismantling Gender Bias to Ensure Equitable Hemophilia Treatment in Women and Girls
Discover Vital Community Services with United Way 211
Discover Vital Community Services with United Way 211
Advocating for Shared Decision-Making in Hemophilia B Care
Advocating for Shared Decision-Making in Hemophilia B Care
New Plasma Caucus in the House
New Plasma Caucus in the House
Our Commitment to Equitable Healthcare and Access for All Women
Our Commitment to Equitable Healthcare and Access for All Women
House Passes Build Back Better Act; Fight Now Moves to Senate
House Passes Build Back Better Act; Fight Now Moves to Senate
HHS to States: Tell Immigrants Medicaid and CHIP Are for Them Too
HHS to States: Tell Immigrants Medicaid and CHIP Are for Them Too
How Have We Adapted to Change?</a>
How Have We Adapted to Change?
New Legislation Would Mandate Medicare Coverage for Genetic Counseling
New Legislation Would Mandate Medicare Coverage for Genetic Counseling
Your Story Is Your Advocacy
Your Story Is Your Advocacy