Get to know our community, stay up to date on important industry news and learn about the latest happenings with Hemophilia B

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Marie Ferrell
Marie Ferrell
Izzy
Izzy
Captain Bill Patsakos
Captain Bill Patsakos
Cyberbullying and Social Media
Cyberbullying and Social Media
The Beats Program
The Beats Program
THE WORLD OF WORK
THE WORLD OF WORK
Hemophilia B Classifications for Women
Hemophilia B Classifications for Women
Federal Funding and Hemophilia Treatment Centers
Federal Funding and Hemophilia Treatment Centers
Ashley Zebley
Ashley Zebley
Heidi
Heidi
Rare Pediatric Disease & Priority Review Vouchers
Rare Pediatric Disease & Priority Review Vouchers
Getting to Know Dr. David Clark
Getting to Know Dr. David Clark
Hemlibra for Hemophilia B!?
Hemlibra for Hemophilia B!?
Prophylaxis for Mild or Moderate Hemophilia B 
Prophylaxis for Mild or Moderate Hemophilia B 
Cognitive & Behavioral Outcomes
Cognitive & Behavioral Outcomes
Heavy Menstrual Bleeding
Heavy Menstrual Bleeding
Quality of Life
Quality of Life
Depression, Anxiety, and Fatigue
Depression, Anxiety, and Fatigue
Distribution of Alprolix in the Blood Vessel Wall
Distribution of Alprolix in the Blood Vessel Wall
History of Hemophilia in Women
History of Hemophilia in Women
Characteristics of Hemophilia in Women
Characteristics of Hemophilia in Women
Bone Mineral Density and Hemophilia
Bone Mineral Density and Hemophilia
Ehlers-Danlos, Factor IX and Vitamin C
Ehlers-Danlos, Factor IX and Vitamin C
Epilepsy and Intracranial Hemorrhage
Epilepsy and Intracranial Hemorrhage
Impact of Natural Variation in Clotting Factor Levels on Bleeding in Hemophilia
Impact of Natural Variation in Clotting Factor Levels on Bleeding in Hemophilia
Cancer in People with Hemophilia and HIV Infection
Cancer in People with Hemophilia and HIV Infection
Controversy over ISTH Hemophilia Treatment Guidelines
Controversy over ISTH Hemophilia Treatment Guidelines
Our plasma hero
Our plasma hero
Pfizer Advocacy Meeting
Pfizer Advocacy Meeting
Hemophilia Landscape Emerging Therapies
Hemophilia Landscape Emerging Therapies

Industry News.

Featured
Alternative Funding Mechanisms - A Call to Action
Alternative Funding Mechanisms - A Call to Action
CHB Action Alert for Copay Accumulator
CHB Action Alert for Copay Accumulator
First Gene Therapy for Hemophilia B is Approved by the FDA
First Gene Therapy for Hemophilia B is Approved by the FDA
World Federation of Hemophilia Gene Therapy Registry: now live!
World Federation of Hemophilia Gene Therapy Registry: now live!
Gene Therapy
Gene Therapy
FDA approves CSL’s HEMGENIX® for Gene Therapy for Hemophilia B
FDA approves CSL’s HEMGENIX® for Gene Therapy for Hemophilia B

B Voice Advocacy News.

We want to keep you informed of the issues that underscore why advocacy matters. Check this page periodically for news and information.

Featured
Federal Funding and Hemophilia Treatment Centers
Federal Funding and Hemophilia Treatment Centers

We know that many of you are concerned about the future of federal funding for Hemophilia Treatment Centers (HTCs) given the uncertainty surrounding recent policy changes.

Rare Pediatric Disease & Priority Review Vouchers
Rare Pediatric Disease & Priority Review Vouchers

Making Treatment More Accessible: How Pediatric Vouchers Help Families Afford Hemophilia Care

Increasing PTSD Awareness 
Increasing PTSD Awareness 

Post Traumatic Stress Disorder in bleeding disorders is complex.

Alternative Funding Mechanisms - A Call to Action
Alternative Funding Mechanisms - A Call to Action
Ask Jen: How Common Are Fluctuating Factor Levels in Women?
Ask Jen: How Common Are Fluctuating Factor Levels in Women?
I Feel Isolated with Hemophilia in My Small Town—How Can I Connect with Others?
I Feel Isolated with Hemophilia in My Small Town—How Can I Connect with Others?
CHB Action Alert for Copay Accumulator
CHB Action Alert for Copay Accumulator
Turning a No to a Yes—The Art of Advocacy
Turning a No to a Yes—The Art of Advocacy
Dana
Dana

Dana’s Living Her Life with No Regrets - Embracing Life with Hemophilia B and Finding Joy in Family Adventures

Ask Jen: How do you travel with medications for hemophilia?
Ask Jen: How do you travel with medications for hemophilia?
Sew Connected! From Hemophilia Advocate to Fashion Innovator
Sew Connected! From Hemophilia Advocate to Fashion Innovator
Ask Jen: How do you get your doctor to take you seriously?
Ask Jen: How do you get your doctor to take you seriously?
Novo Nordisk Announces Shortage of 8 mg Vial Size of NovoSeven® RT
Novo Nordisk Announces Shortage of 8 mg Vial Size of NovoSeven® RT
Lauren Phillips
Lauren Phillips

The Power of Self Advocacy for Women Bleeders

Empowering Your Healthcare Journey: Connect with Independent Patient Advocates
Empowering Your Healthcare Journey: Connect with Independent Patient Advocates
Dismantling Gender Bias to Ensure Equitable Hemophilia Treatment in Women and Girls
Dismantling Gender Bias to Ensure Equitable Hemophilia Treatment in Women and Girls
Discover Vital Community Services with United Way 211
Discover Vital Community Services with United Way 211
Advocating for Shared Decision-Making in Hemophilia B Care
Advocating for Shared Decision-Making in Hemophilia B Care
New Plasma Caucus in the House
New Plasma Caucus in the House
House Passes Build Back Better Act; Fight Now Moves to Senate
House Passes Build Back Better Act; Fight Now Moves to Senate
HHS to States: Tell Immigrants Medicaid and CHIP Are for Them Too
HHS to States: Tell Immigrants Medicaid and CHIP Are for Them Too
How Have We Adapted to Change?</a>
How Have We Adapted to Change?
New Legislation Would Mandate Medicare Coverage for Genetic Counseling
New Legislation Would Mandate Medicare Coverage for Genetic Counseling
Your Story Is Your Advocacy
Your Story Is Your Advocacy