Women with hemophilia B
Women with a defective factor IX gene are carriers of hemophilia B. There may be five times as many carriers as there are men with hemophilia, and at least one-third of carriers have factor levels below the normal range. A significant number of them have bleeding problems. Lack of recognition of an obvious condition can make it difficult for women with hemophilia to be taken seriously about their disease
The average time to diagnosis for females was seven years later than for males.
It is important to screen girls in hemophilia families early in their lives.
A group of Chinese researchers looked at 127 hemophilia mothers (93 As, 34 Bs) at their hospital.
Women with bleeding disorders had about 2.3 times the risk of postpartum hemorrhage than did the women without bleeding disorders.
Results from 11,341 Subjects Enrolled in My Life, Our Future
Ehlers Danlos and Factor IX
The Boundless B Podcast
Episode 7: A Mother’s Hemophilia B and Inhibitor Journey
Community and Mental Health, an interview with Dr. Mina Nguyen-Driver
Real Stories from Our Community
Videos
Resources for Women
World Hemophilia Foundation - Women and Girls with Hemophilia
The B2B book series from Pfizer covers a wide range of topics that speak to the hemophilia B community. Hemophilia B: Her Voice, Her Life DOWNLOAD. This book supports and encourages women with hemophilia B on their path to empowerment.
Join together and learn the proper
ways to infuse.
Have legal questions? Attorney
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dealing with Hemophilia B.