Women with hemophilia B
Women with a defective factor IX gene are carriers of hemophilia B. There may be five times as many carriers as there are men with hemophilia, and at least one-third of carriers have factor levels below the normal range. A significant number of them have bleeding problems. Lack of recognition of an obvious condition can make it difficult for women with hemophilia to be taken seriously about their disease
The Boundless B Podcast
The Coalition for Hemophilia B affirms our commitment to equitable healthcare and access for all women. We must protect women by protecting access.
Equal access to health care has been historically challenging for women in the United States and around the world. The failure to properly diagnose and treat bleeding disorders in women is only one example.
More recently, access to reproductive healthcare, which is essential to women’s healthcare, has been broadly challenged in many areas of the country. This may increase barriers and perpetuate inequities, especially within our most vulnerable communities.
Women from Our Community
Upcoming Events
Resources for Women
World Hemophilia Foundation - Women and Girls with Hemophilia
The B2B book series from Pfizer covers a wide range of topics that speak to the hemophilia B community. Hemophilia B: Her Voice, Her Life DOWNLOAD. This book supports and encourages women with hemophilia B on their path to empowerment.
Join together and learn the proper
ways to infuse.
Have legal questions? Attorney
Donnie Akers has answers.
Learn how others like you are
dealing with Hemophilia B.