The B Hub
Resource Library
Welcome to our Resource Library Blog page, where you can discover valuable content tailored to your specific interests and needs. Whether you're seeking information on the latest advancements in hemophilia B treatment or looking for personal stories from individuals with hemophilia B, this is the place to be. With our convenient filter options or by exploring the dedicated hubs, you can easily access articles that resonate with you on a deeper level. Take advantage of this resource and empower yourself with knowledge and insights that are relevant to your unique journey.
What’s Happening with Insurance Companies
What’s Happening with Insurance Companies—And Why It Affects You
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Medicaid Cuts Could Impact Bleeding Disorder Care – Take Action Now!
Reflections on the 2025 Sanofi Patient Advocacy Council
Reflections on the 2025 Sanofi Patient Advocacy Council by Kim Phelan
THE WORLD OF WORK
If you have been working but are finding it increasingly hard to do your job, especially if your physical condition changes, you may wish to consider a number of tools which may help.
Federal Funding and Hemophilia Treatment Centers
We know that many of you are concerned about the future of federal funding for Hemophilia Treatment Centers (HTCs) given the uncertainty surrounding recent policy changes.
Rare Pediatric Disease & Priority Review Vouchers
Making Treatment More Accessible: How Pediatric Vouchers Help Families Afford Hemophilia Care
Pfizer Advocacy Meeting
Updates from Pfizer’s Rare Disease Advocacy Collaborative held December 2024.
Kim Phelan Speaks at Congressional Briefing on Gene Therapies
Kim Phelan Speaks on Panel at the Institute for Gene Therapies
Advancing health equity and enhancing chronic disease care with key CMS letters
Supporting Health Equity and Chronic Disease Care Through Key CMS Letters
The Art of Pivoting: Adjusting to an Unpredictable World
Is it just me or are world circumstances becoming more uncertain, unpredictable, and unstable?