Our plasma hero

Nemo Delgado has a very special and personal motivation for donating plasma – his daughter, Daniela.

Nemo has donated plasma many times. He knows his donations help thousands of individuals with debilitating conditions who rely upon plasma-derived therapies for their health. However, Nemo has a very special and personal motivation for donating plasma – his daughter, Daniela.

Nemo Delgado

Daniela has severe von Willebrand Disease (VWD) Type 1C and Ehlers Danlos Syndrome, both debilitating conditions. VWD is a genetic condition like hemophilia that can cause uncontrolled bleeding, joint damage, and other complications. It is a lifelong ailment and there is no cure.

Daniela’s VWD is treated with regular intravenous infusions at home of a clotting factor made from donated human plasma. Without these donations, the medicine she uses would not exist.

Nemo and his wife Janine, who also has VWD and uses a plasma-derived product, have helped inspire Daniela to use her conditions as a force for good. When she was only four years old, she realized other kids with life-threatening illnesses or disabilities often need something to smile about. She decided to create special, beautiful, customized cakes and present them at no charge to deserving children. Nemo and Janine are avid bakers, so it was no surprise Daniela chose baking cakes as the delicious means to her important mission.

Today, through Daniela’s Little Wish, the organization she founded with her parents’ support, Daniela continues to bake and present cakes while giving motivational talks and cupcake workshops throughout the community and across the country. Nemo, Janine and Daniela are also involved with the Coalition for Hemophilia B as some of our participants also have VWD.

Daniela led several cupcake-making workshop for families in our community.

The Coalition has strongly supported the Delgados’ efforts in a variety of ways and is proud to have Nemo Delgado as our Plasma Hero.