Advocacy
No matter our differences, we care for one another. Right now, Congress is considering cuts that could devastate Medicare, Medicaid, ACA, and SNAP. The vote will happen before July 4th. We have limited days to make a difference.
📞 Take 2 minutes to call your Senators today: 202-224-3121 or 866-426-2631.
Here’s how these cuts would harm millions—click below to learn more:
💡 Read my full letter to you here
Together, we stand for health, dignity, and community.
Advocacy in our community
The Boundless B Podcast
We’re all in this together.
Advocacy is how this community expresses our “B Voice” in asking our elected officials and other leaders for what we need to live happy, healthy lives. There are several ways you can get involved and express YOUR B voice!
Our B Voice advocacy blog tracks developments related to the Affordable Care Act and speaks out on issues like the Children's Health Insurance Program (CHIP) and charitable premium assistance. You can also register as an advocate and join our advocacy efforts.
Perspectives of Patients' Report
Health Equity in the Hemophilia B Community
Perspectivas del informe de los pacientes
Equidad en la comunidad con hemofilia B
Join together and learn the proper
ways to infuse.
Have legal questions? Attorney
Donnie Akers has answers.
Learn how others like you are
dealing with Hemophilia B.