The Coalition for Hemophilia B

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Ask Jen: How do you travel with medications for hemophilia?

Dear Jen,

My husband and I are planning a trip to Mexico. He has hemophilia B. Any advice on how to travel by airplane with factor? 

Signed,

The Jetsetting Hemophilia Duo

Dear Jetsetting,

Absolutely, traveling hemophilia requires some preparation, but it's entirely manageable. 

Here's some advice:

Consult with your Hematologist

Before your trip, consult with your husband's hematologist. They can provide guidance on the amount of clotting factor to bring based on the duration of your trip and your husband's individual needs. They can also get you in touch with an HTC or medical facility at your destination if needed.

Obtain Necessary Supplies 

Ensure you have an adequate supply of things like needles, syringes, saline, gloves, bandaids, alcohol swabs, and gauze. Consider packing some supplies in your carry-on luggage and some in your checked luggage, just in case one gets lost or delayed.

TSA PreCheck

The Transportation Security Administration's (TSA) PreCheck program has been a game-changer for me. Investing in PreCheck, to the tune of $80, has proven to be one of the most worthwhile expenditures in my life. With PreCheck, navigating through airport security is a breeze, devoid of the typical scrutiny and questioning regarding my medical supplies such as needles and medications. The PreCheck program undeniably enhances my travel experience, offering a smoother and less stressful journey.

Documentation

One of the most important documents when I travel has been my travel letter from my HTC. This document outlines the intricacies of my bleeding disorders and details my diagnosis, medication plan, and emergency treatment plan. 

Storage

Pay attention to how your clotting factor needs to be stored. Some types require refrigeration, while others may be stored at room temperature. Ensure you have access to appropriate storage facilities during your trip to maintain the integrity of the clotting factor.

Transportation

Familiarize yourself with airline policies regarding carrying medical supplies. Most airlines allow passengers to carry necessary medical supplies in an extra bag. Still, it's always a good idea to check in advance and notify the airline if you have any special requirements.

According to the TSA website: “Ice packs, freezer packs, gel packs, and other accessories may be presented at the screening checkpoint in a frozen, partially frozen or melted state to keep medically necessary items cool. All items, including supplies associated with medically necessary liquids such as IV bags, pumps and syringes must be screened before they will be permitted into the secure area of the airport.”

Insurance Coverage

Check with your health insurance provider to ensure coverage for clotting factor while traveling abroad or even within the US. It's also wise to look into travel insurance that covers medical emergencies, including those related to pre-existing conditions like hemophilia.

Emergency Plan

Have a plan in place in case of a bleeding episode or emergency while traveling. Know the location of nearby medical facilities and how to access emergency medical services in Mexico. Consider learning some basic Spanish phrases related to your husband's condition to communicate more effectively in case of an emergency.

By taking these steps and adequately preparing, you can ensure a safe and enjoyable trip to Mexico for you and your husband. 

Wishing you smooth skies and safe travels!

Jen


About Jen

Jennifer is an entrepreneur whose passion for digital marketing and technology is matched only by her profound connection to the bleeding disorder community. Diagnosed with hemophilia B and Von Willebrand’s disease at a young age, Jennifer’s journey fuels her passion for advocacy and awareness.

A University of Wisconsin, Madison graduate, Jennifer holds a dual BA in marketing and journalism. Originally from Brookfield, Wisconsin, Jennifer now enjoys the sunny ambiance of Punta Gorda, Florida. Through her advocacy efforts, she aims to amplify the voices of those affected by hemophilia and other bleeding disorders, with a special emphasis on empowering women. Her column, Ask Jen, reflects her unwavering dedication to making a meaningful impact in the lives of others.