Discover your community in video

Hemophilia B Awareness

We are thrilled to release this short yet informative video for raising awareness about Hemophilia B! We encourage you to share this video with your friends and family.

B Scenes

Hemophilia B Real-Life Experiences

A webisode series made possible by Biogen

BScene—featuring Rocky Williams

BScene—featuring Hillary Goldrick

BScene—featuring Bill Patsakos

BScene—featuring Marie Ferrell

BScene—featuring Wayne Cook

BScene—featuring Evan Poole

BScene—featuring The Feagins Family

BScene—featuring The Elliot Goldrick

Annual Symposium

Our yearly educational symposium hosts families from across the USA for three and a half days of valuable sessions on every aspect of life with hemophilia B.

2023 Symposium

2020 Virtual Symposium Talent Show

Generation IX Project

ADVOCACY MEETINGS FOR ADULTS AGE 20+

The Generation IX Project is an educational program and training ground for future leaders in the hemophilia B community.

Generously and exclusively sponsored by Medexus Pharma and facilitated by GutMonkey

The Generation IX Experience

The Beats Music Program

The Beats Music Program was created for people with bleeding disorders to connect and build strong relationships through the common bond of music. Research indicates that 30% to 60% of patients with hemophilia experience depression.

Made possible by the generosity of Medexus Pharma (conductor-level sponsor) and CVS Specialty Pharmacy (performer-level ponsor)

The Beats Final Performance (2023)

The Beats Music Program Overview (2020)

Knocking on Heaven’s Door

Silver Linings (Together)

That's What Friends Are For

Member Videos

VIDEOS FORM OUR HEMO B COMMUNITY

What’s in Your Emergency Bleed Kit? Member April Driesse shares with us her essential go-to items to have packed in case of an emergency.

Music Video by Shelby Smoaks Bleeder “Promises,” by writer, musician, advocate, educator Shelby Smoaks and his indie rock band Bleeder.